These Terms of Use ("Terms") govern your access to and use of the website operated by Dystonia Foundation ("Dystonia Foundation," "we," "us," or "our"), currently doing business as Down with Dystonia. By accessing or using our website, you agree to be bound by these Terms. If you do not agree, please do not use our website.

We reserve the right to modify these Terms at any time. Changes will be effective upon posting to the website with an updated Effective Date. Your continued use of the website following any changes constitutes your acceptance of the revised Terms.

Dystonia Foundation is a California nonprofit corporation with federal 501(c)(3) tax-exempt status. We are in the process of transitioning our operating name from "Down with Dystonia" to "Dystonia Foundation." During this transition, both names may appear across our materials and platforms.

Our mission is to shorten Dystonia's diagnostic delays through awareness, education, and advocacy — preventing misdiagnosis and accelerating access to effective care.

You may access and use our website for lawful, personal, and non-commercial purposes consistent with our mission. You agree not to:

  • Use the website in any manner that violates applicable federal, state, or local laws or regulations
  • Transmit any unsolicited commercial communications or spam
  • Attempt to gain unauthorized access to any portion of the website or its related systems
  • Interfere with or disrupt the integrity or performance of the website
  • Collect or harvest personal information of other users
  • Impersonate any person or entity or misrepresent your affiliation with any person or entity
  • Upload or transmit viruses, malware, or other harmful code
  • Use the website for any commercial purpose without our prior written consent

IMPORTANT: The content on this website is provided for general informational and educational purposes only. It is not intended to constitute, and should not be construed as, medical advice, diagnosis, or treatment. Always seek the advice of a qualified healthcare professional with any questions you may have regarding a medical condition such as Dystonia. Never disregard professional medical advice or delay seeking it because of information found on this website.

Similarly, nothing on this website constitutes legal, financial, or tax advice. Consult a qualified professional for advice specific to your situation.

All content on this website — including but not limited to text, graphics, logos, images, audio clips, and software — is the property of Dystonia Foundation or its content suppliers and is protected by applicable copyright, trademark, and other intellectual property laws.

You may view, download, and print content from this website solely for your personal, non-commercial use, provided you:

  • Do not remove or alter any copyright, trademark, or other proprietary notices
  • Do not modify or reproduce the content in any way that misrepresents the organization or its mission
  • Do not use the content for commercial purposes without our written permission

The name "Dystonia Foundation," "Down with Dystonia," and associated logos and marks are trademarks of Dystonia Foundation. Unauthorized use is strictly prohibited.

Donations made through our website are processed by Donorbox, a third-party payment processor. Dystonia Foundation is a recognized 501(c)(3) tax-exempt organization, and donations may be tax-deductible to the extent permitted by law. We recommend consulting your tax advisor for guidance specific to your situation.

All donations are considered final. Refund requests are evaluated on a case-by-case basis. To request a refund, please contact us at the information provided in Section 12.

We are committed to using donated funds in furtherance of our charitable mission. Our financial information is available upon request and may be filed with public charity registries as required by law.

Our website may contain links to third-party websites or embed content from third-party platforms (such as social media). These links and embedded features are provided for your convenience and informational purposes only. We do not endorse, control, or assume responsibility for the content, privacy practices, or availability of third-party websites.

Your interactions with third-party websites are governed by their respective terms and privacy policies. We encourage you to review those policies before engaging with any third-party platform.

8.1 Disclaimer of Warranties

THE WEBSITE AND ITS CONTENT ARE PROVIDED ON AN "AS IS" AND "AS AVAILABLE" BASIS WITHOUT WARRANTIES OF ANY KIND, EITHER EXPRESS OR IMPLIED, INCLUDING BUT NOT LIMITED TO WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, OR NON-INFRINGEMENT. WE DO NOT WARRANT THAT THE WEBSITE WILL BE UNINTERRUPTED, ERROR-FREE, OR FREE OF VIRUSES OR OTHER HARMFUL COMPONENTS.

8.2 Limitation of Liability

TO THE FULLEST EXTENT PERMITTED BY LAW, DYSTONIA FOUNDATION, ITS OFFICERS, DIRECTORS, EMPLOYEES, VOLUNTEERS, AND AGENTS SHALL NOT BE LIABLE FOR ANY INDIRECT, INCIDENTAL, SPECIAL, CONSEQUENTIAL, OR PUNITIVE DAMAGES ARISING OUT OF OR RELATING TO YOUR USE OF OR INABILITY TO USE THE WEBSITE, EVEN IF WE HAVE BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGES.

You agree to indemnify, defend, and hold harmless Dystonia Foundation, its officers, directors, employees, and volunteers from and against any claims, liabilities, damages, losses, and expenses (including reasonable attorneys' fees) arising out of or related to your use of the website, your violation of these Terms, or your violation of any rights of another party.

These Terms are governed by and construed in accordance with the laws of the State of California and applicable federal law, without regard to conflict of law principles. You agree that any dispute arising from or relating to these Terms or your use of the website shall be resolved exclusively in the state or federal courts located in Sonoma County, California, and you consent to the personal jurisdiction of such courts.

As a nonprofit organization, we also operate in compliance with applicable federal laws governing 501(c)(3) organizations, including regulations enforced by the Internal Revenue Service and the California Attorney General's Registry of Charitable Trusts.

Dystonia Foundation is currently transitioning its operating name from "Down with Dystonia" to "Dystonia Foundation." During this transition period, references to either name refer to the same legal entity. All rights, obligations, and legal relationships established under either name remain in full force and effect.

For questions about these Terms of Use, to report a concern, or to request information about the organization, please contact us:

Dystonia Foundation (DBA Down with Dystonia)

Physical Address: 9740 Via Bella Vista, Kenwood, CA 95452

Mailing Address: P.O. Box 1126, Kenwood, CA 95452

Email: contact@downwithdystonia.org

Website: https://dystonia-foundation.org

If any provision of these Terms is found to be invalid or unenforceable, the remaining provisions shall continue in full force and effect. These Terms, together with our Privacy Policy, constitute the entire agreement between you and us regarding your use of the website and supersede any prior agreements.